I sustained my brain injury from a viral infection that creeped its way
into my head while I slept on a November night in 1978. You could say that I
never really woke up from this nightmare that shadowed me throughout the years
while I grew up, at home, in school, at the various jobs I held.
I’ve dealt with failure, depression, discrimination, fear, isolation,
frustration, anger, feeling stupid, being called stupid.
These things still lurk around the corner. I am easily fatigued, I tend
to have trouble retaining information, I work at a different pace than most, and
I require certain workplace accommodations.
Trauma touched my life again in 2001 when my mom fell and hit her head,
and brain injury re-introduced itself. Her life has been altered ever since.
She lives with Aphasia, she is unbalanced, and she can no longer drive. She
seems to even deal with the same weight lose that I do.
Brain injury, I think, can be defined as episodic, focal and diffuse,
varying. It affects everyone differently, but in many ways, exactly the same.
Let’s face it, life with a brain injury, whether it is two months after
the initial incident or thirty years, can suck! It can suck big time!! But,
life without a brain injury can also suck just as much, if not more.
I am a guy who likes to see the glass half full, even when looking into
the deepest, darkest abyss. Okay, I haven’t always been like this. But over
time I have come to learn that the barriers my brain injury has brought into my
life, while very frustrating at times, can also be my greatest assets.
I still get scared, I often feel lonely and confused. But a part of me
has also learned to embrace that vulnerability. I have grown strong and become
wise. And just like me, I think we should all have the courage to be imperfect.
It can be argued too that imperfection and vulnerability are two of humanities
greatest traits.
Brain injury has led to all of us feeling some sort of loss I think, a
desire to get back to something. I say let go of who you think you should be,
and be who you are. And don’t misunderstand; this is not the easiest thing for
us to do. It took me a long time of thinking I had to be a certain way, someone
that I wasn’t, to fit into the so called “norm”. I still think I get caught up
in that every once and a while.
But I’ve realized something. Regardless of any mishaps or horrors, regardless
of this dreaded thing, brain injury, that has become part of my life, it is my
life, and life is the “norm.”
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So, now it is time to stand
up, take control of who you are, and move forward; even if it is by inches.
Because this is the moment.
As I stand here,
in the back of the Loyal True Blue & Orange Home, on this beautiful June
day, Friday the 3rd of 2016, I take the time, even while I read
these words, to appreciate and listen to the quiet noise around me. You, me, all of
us; the birds, the cars, all of it.
I think about how no one is back at home
except for my dog who has probably jumped up and sleeps on my bed;
his peace being snuggled
into the place where I close my eyes and have often gotten lost in dreamland.
Getting lost.....mentally anyway...... something that is not too terribly hard
for me to do.
It is not
difficult for me to lose focus and have my brain drift off track, and so I work
hard from day to day to keep it and myself on course. Often when I am alone I
allow my thoughts to wander. Today I am not alone, but I still allow my
thoughts to wander; and it is all good. Because this is the moment I realize
that we can make our own changes to our own lives.
There are many times that I have allowed frustrations to run wildly through my
body over silly things, things I don't have and things I cannot control. But when
the wave of emotion rolls into the quietness of the after moment, I come to see
that I don't really need more than I got and shouldn't worry about control
because it will either all work out or it won't and I'll do what I have always
done..... survive and keep trying.
This is the moment when you and I should take time to close our eyes and
realize that we are all superstars and that we can love as much as we can be
loved.
This is the moment
I remind myself that happiness and success are measured and valued wrong,
because they come from within ones soul and are NOT checked off from a
sunshine list. And I wonder if I have reached my capabilities, my peak, or if
more is coming.
Because whether it
is or not, I am always going to be reaching for more.... more knowledge, more
acceptance, more skill, more love, more peace.
This is the moment I stumble upon the revelation that even in my darkest hours
I am surrounded by more beauty than I often acknowledge....... I think that
applies to most of us.
And this is the
moment I feel in my heart that I still love this sometimes angry and depressed
world and I will never stop.
When I was younger, like I've already mentioned,I faced some very difficult challenges and barriers that I still see shadows of
today and I know that with time they will get better but some can also get
worse.
This is the moment
when I can let my inner calmness fill my entire body and head so that I can
breathe because there are certain factors that will make me forget but also
allow me to recall on occasion.
This is the moment to laugh and to cry, to believe, to learn; learn to share,
accommodate and accept. This is the moment to realize that it is alright,
alright to slow down and catch a breath, to fall behind a little, to be afraid,
to be different; there is nothing wrong with being different.
Frustration will
come again along with its buddies confusion and depression and it is okay. The
struggle sometimes felt within is just that, a struggle; neither bad nor good
and only we can let it go. Let it go.
It is a time to
know that forgetting and then reminding oneself of these moments, these
feelings, is part of life; it is part of discovery, vivid and glorious! These
moments, they can occur every day if we let them
This is why we need to cherish our moments, however small and short lived or
big and stretched out; because they are all beautiful and they are all worth
it. Stand tall, and be proud of who you are. Brain injury; the ups and downs;
and everything that comes with it.